The Childhood Eye Cancer Trust (CHECT) is the UK’s only charity solely dedicated to supporting babies, children, and families affected by retinoblastoma — a rare and aggressive form of eye cancer affecting those aged 6 and under.
Every year, around 50 babies and children in the UK are newly diagnosed with this condition, and approximately 200 children are receiving treatment or ongoing care at any given time.
CHECT's mission is to prevent sight loss and to offer support to all those affected by retinoblastoma. Their core pillars are:
Support For All – They provide a lifeline for those that need CHECT by offering guidance, emotional support and practical advice from diagnosis, during treatment and throughout the lives of those affected.
Funding Research – They fund pioneering research into the causes, treatment and prevention of Rb.
Raising Awareness - They raise awareness amongst the general public and healthcare professionals to ensure early diagnosis and treatment.
CHECT receives no government or regulatory funding and is therefore reliant on donations to deliver our services.
There are only two locations in the UK currently treating this rare childhood cancer: Birmingham and London. CHECT’s Support Workers work as part of the NHS team and are based at the clinics at Birmingham Women’s & Children’s Hospital and the Royal London Hospital. Dedicated support for these rare eye cancers is not available or funded by the NHS, hence the importance of CHECT’s presence at both hospitals. Because these are the only two UK hospitals diagnosing and treating retinoblastoma, CHECT is able to guarantee the offer of support to every single family affected by retinoblastoma.
Your support will contribute towards their unique, unreplicated and vital support for families and individuals affected by retinoblastoma. Thank you!