Epilepsy Action

Bex's page

Bex Hodson

Bex Hodson

My Story

My name is Bex, I was diagnosed with epilepsy two years ago.

After contemplation, I have decided to share my diagnosis. While epilepsy does not define me it has impacted my family and day to day decisions.

My last seizure occurred in April 2024. I was waiting for a train with my husband and twins. It was a frightening experience for us all, as we were unprepared for what was happening. I would have done anything to shield my children from witnessing that moment; however, they have since learned how to respond if it happens again - I could not be prouder.

Epilepsy Action has been an incredible source of support and I am incredibly proud to represent their organisation. Their website and research has helped me, and those around me, to better understand this condition. I have shared videos with friends so they know what to do should I have a seizure.

Following my diagnosis, I faced the challenge of not being able to drive for twelve months. This had a profound impact on our family dynamic and I am immensely grateful to my husband for his unwavering support (Husband & Dad Taxi!). During this time I became a mental health first aider and the learning showed me that the loss of independence, and reliance on others, had impacted my mental health. My new found knowledge helped me realise that I was suffering from depression and anxiety.

Recognising these challenges motivated me to seek help and I am in a significantly better place today. My hope is to use my experiences to help others. There is a significant link between epilepsy and depression; nearly one-third of individuals with epilepsy experience depression - almost three times the rate found in the general population.

I feel fortunate that my experiences have enabled me to learn more about myself while appreciating the love and support I have from family, friends, and colleagues. With determination, I believe I can achieve anything — including running 26.2 miles!

Epilepsy is often misunderstood; many view it as an unpredictable condition associated with fear. However, Epilepsy Action is dedicated to creating a world without limits for everyone affected by epilepsy. They connect individuals with resources they can trust while advocating against misunderstanding and prejudice.

In support of the amazing people at Epilepsy Action I am excited (I think!) to run the 2026 London Marathon. Please support me and Epilepsy Action. Help me beat my fundraising goal (£2,800). 

Epilepsy Action

Raising for:

Epilepsy Action
105%

Funded

  • Target
    £3,000
  • Raised so far
    £3,155
  • Number of donors
    80

My Story

My name is Bex, I was diagnosed with epilepsy two years ago.

After contemplation, I have decided to share my diagnosis. While epilepsy does not define me it has impacted my family and day to day decisions.

My last seizure occurred in April 2024. I was waiting for a train with my husband and twins. It was a frightening experience for us all, as we were unprepared for what was happening. I would have done anything to shield my children from witnessing that moment; however, they have since learned how to respond if it happens again - I could not be prouder.

Epilepsy Action has been an incredible source of support and I am incredibly proud to represent their organisation. Their website and research has helped me, and those around me, to better understand this condition. I have shared videos with friends so they know what to do should I have a seizure.

Following my diagnosis, I faced the challenge of not being able to drive for twelve months. This had a profound impact on our family dynamic and I am immensely grateful to my husband for his unwavering support (Husband & Dad Taxi!). During this time I became a mental health first aider and the learning showed me that the loss of independence, and reliance on others, had impacted my mental health. My new found knowledge helped me realise that I was suffering from depression and anxiety.

Recognising these challenges motivated me to seek help and I am in a significantly better place today. My hope is to use my experiences to help others. There is a significant link between epilepsy and depression; nearly one-third of individuals with epilepsy experience depression - almost three times the rate found in the general population.

I feel fortunate that my experiences have enabled me to learn more about myself while appreciating the love and support I have from family, friends, and colleagues. With determination, I believe I can achieve anything — including running 26.2 miles!

Epilepsy is often misunderstood; many view it as an unpredictable condition associated with fear. However, Epilepsy Action is dedicated to creating a world without limits for everyone affected by epilepsy. They connect individuals with resources they can trust while advocating against misunderstanding and prejudice.

In support of the amazing people at Epilepsy Action I am excited (I think!) to run the 2026 London Marathon. Please support me and Epilepsy Action. Help me beat my fundraising goal (£2,800).