My Story

Ooops I did it again!! Despite having adamantly claimed that my previous London Marathon effort was going to be a "one and done" affair, I am delighted to report that I've been given the chance to do it again, to support a charity close to heart of my extended family. My husband's cousin's eldest child has dwarfism and this is how I came to be invited to support the cause.

People with dwarfism may suffer with a number of linked health difficulties, as well as suffering from persistent negative social stereotyping around their condition. They are frequently depicted in an unflattering light in films, literature and television. The brilliant Peter Dinklage once described people making jokes at the expense of little people as "one of the last bastions of acceptable prejudice". It is against this backdrop that the Restricted Growth Association exists; providing support for individuals with dwarfism or their families, promote wider understanding of the condition, and promote wider public awareness of the condition.

The RGA provides support to those experiencing the social and medical consequences of dwarfism conditions.  Our goal is to reduce the disadvantages of people with dwarfism by helping to increase their knowledge, confidence and ability to meet the challenges that they face as a result of their condition. We also aim to ensure that the diversity of the short stature community is promoted and celebrated. Crucially the RGA also provides a network for adults and children throughout the UK who have a rare genetic condition.