LAM Action

Jonathan's page

Jonathan Smith

Jonathan Smith

My Story

Run for Audrey

In April 2026, I’ll be taking on the London Marathon in support of LAM Action, the UK charity dedicated to supporting those affected by Lymphangioleiomyomatosis (LAM) and driving vital research into this rare lung disease.

LAM is a condition very close to my family’s heart. My wife Emma’s auntie, Audrey Ferguson, was diagnosed with LAM in 1997 when she was just 24. At that time, very little was known about the disease, and before her diagnosis Audrey suffered multiple lung collapses. Over the years, her condition worsened to the point where she was on oxygen almost all the time. After a long wait - and eight false alarms - Audrey finally received a lung transplant in August 2008. The road afterwards was anything but easy: she spent nearly a month in intensive care and faced several complications, but the transplant eventually worked, giving her a new lease of life. Audrey’s resilience, along with the progress that charities like LAM Action have helped to make, continues to inspire me.

LAM Action has been a lifeline for many patients and families. The charity offers guidance, community, and practical support for women living with LAM, while also funding important medical research. This research has already improved understanding of the disease, helped doctors provide better care, and continues to push forward the search for more effective treatments.

Through the support given to Audrey, our family have witnessed firsthand the crucial work which LAM Action carry out: offering hope, support and progress for all those affected. Every donation, no matter the size, truly makes a difference in the fight against this rare disease.

Thank you so much for supporting me and helping make every step of this marathon count.

LAM Action

Raising for:

LAM Action
125%

Funded

  • Target
    £5,000
  • Raised so far
    £6,270
  • Number of donors
    114

My Story

Run for Audrey

In April 2026, I’ll be taking on the London Marathon in support of LAM Action, the UK charity dedicated to supporting those affected by Lymphangioleiomyomatosis (LAM) and driving vital research into this rare lung disease.

LAM is a condition very close to my family’s heart. My wife Emma’s auntie, Audrey Ferguson, was diagnosed with LAM in 1997 when she was just 24. At that time, very little was known about the disease, and before her diagnosis Audrey suffered multiple lung collapses. Over the years, her condition worsened to the point where she was on oxygen almost all the time. After a long wait - and eight false alarms - Audrey finally received a lung transplant in August 2008. The road afterwards was anything but easy: she spent nearly a month in intensive care and faced several complications, but the transplant eventually worked, giving her a new lease of life. Audrey’s resilience, along with the progress that charities like LAM Action have helped to make, continues to inspire me.

LAM Action has been a lifeline for many patients and families. The charity offers guidance, community, and practical support for women living with LAM, while also funding important medical research. This research has already improved understanding of the disease, helped doctors provide better care, and continues to push forward the search for more effective treatments.

Through the support given to Audrey, our family have witnessed firsthand the crucial work which LAM Action carry out: offering hope, support and progress for all those affected. Every donation, no matter the size, truly makes a difference in the fight against this rare disease.

Thank you so much for supporting me and helping make every step of this marathon count.