MOTOR NEURONE DISEASE ASSOCIATION | MND Association

Lucy's page

Lucy O'Brien

Lucy O'Brien

My Story

I am taking part in the TCS London Marathon to help families affected by motor neurone disease. Your support will make a difference.  

My beautiful Nanny, Bridget was diagnosed with Motor Neurone Disease in June 2020. Just 6 months later, we lost her and my world changed forever.

I’ll never forget the day I took Nan for a check up after she was experiencing difficulty swallowing.. The neurologist said the words Motor Neurone Disease, the look in his eyes when he said those words is something that will stay with me, forever. He knew exactly what we were about to face and the months that followed were truly devastating 🥹 I was so naive sat in that room 5 years ago, having no idea what MND was. 

Nan wasn’t just ‘Nan’ she was our world, our absolute everything.

After Nans diagnosis my sister and I cared for her every single day during those 6 months, and to watch such a cruel disease take hold so quickly was truly heartbreaking.

I remember when i was sat in that room thinking we will tackle this and Nan will still be here in years to come, but the truth is as the months went by MND takes so much that it’s harder to watch the person you love be here than not. There’s no cure to stop what was happening.

MND strips away so much, so fast.. your voice, your movement, your independence. But through it all, my Nan never stopped smiling and trying to keep us all going by her love for life, despite what she was facing day in day out 💔

I’ll never forget Nan saying “I won’t let this rapid disease take away my enthusiasm for life.”

That strength is what will carry me through In 2026, I’ll be running the London Marathon something completely out of my comfort zone to raise money for the MND Association, a charity that means the world to me and my family and affects so many 🥹

Running doesn’t come naturally to me, yikes. But if my Nan could face MND with courage and grace, I can push myself through every mile in her memory.

Please, if you can, help me support the MND Association. Your donation will fund vital research, provide care and support and bring us closer to a cure for this heartbreaking disease - it’s one of those things you never think it will affect someone you love.. we thought the same ❤️

Whether you can donate £5 or £500, every penny counts in the fight against MND. The money raised will provide care and support for people living with MND and their families and carers. It will also fund vital research to help better understand the disease and bring us closer to finding a cure. 

113%

Funded

  • Target
    £7,000
  • Raised so far
    £7,903
  • Number of donors
    260

My Story

I am taking part in the TCS London Marathon to help families affected by motor neurone disease. Your support will make a difference.  

My beautiful Nanny, Bridget was diagnosed with Motor Neurone Disease in June 2020. Just 6 months later, we lost her and my world changed forever.

I’ll never forget the day I took Nan for a check up after she was experiencing difficulty swallowing.. The neurologist said the words Motor Neurone Disease, the look in his eyes when he said those words is something that will stay with me, forever. He knew exactly what we were about to face and the months that followed were truly devastating 🥹 I was so naive sat in that room 5 years ago, having no idea what MND was. 

Nan wasn’t just ‘Nan’ she was our world, our absolute everything.

After Nans diagnosis my sister and I cared for her every single day during those 6 months, and to watch such a cruel disease take hold so quickly was truly heartbreaking.

I remember when i was sat in that room thinking we will tackle this and Nan will still be here in years to come, but the truth is as the months went by MND takes so much that it’s harder to watch the person you love be here than not. There’s no cure to stop what was happening.

MND strips away so much, so fast.. your voice, your movement, your independence. But through it all, my Nan never stopped smiling and trying to keep us all going by her love for life, despite what she was facing day in day out 💔

I’ll never forget Nan saying “I won’t let this rapid disease take away my enthusiasm for life.”

That strength is what will carry me through In 2026, I’ll be running the London Marathon something completely out of my comfort zone to raise money for the MND Association, a charity that means the world to me and my family and affects so many 🥹

Running doesn’t come naturally to me, yikes. But if my Nan could face MND with courage and grace, I can push myself through every mile in her memory.

Please, if you can, help me support the MND Association. Your donation will fund vital research, provide care and support and bring us closer to a cure for this heartbreaking disease - it’s one of those things you never think it will affect someone you love.. we thought the same ❤️

Whether you can donate £5 or £500, every penny counts in the fight against MND. The money raised will provide care and support for people living with MND and their families and carers. It will also fund vital research to help better understand the disease and bring us closer to finding a cure.