My Story

September 16th 2024 the day my younger brother Thomas passed, he fought a battle with Cystic Fibrosis (CF) for 24 years, sadly passing at only 24 years old.

I’m running the 2026 London Marathon in his memory whilst raising money for the Cystic Fibrosis Trust, a charity that continues to support those living with CF, their families and friends. There is still no cure for this genetic disease that continues to effect over 11,000 people in the UK.

CF is a genetic condition in which you are born with, it causes a build up of mucus on the lungs and effects the digestive system that over time effects things such as your breathing, development, weight management and many other symptoms.

Thomas or Tom as he is known to his family and friends fought his fight for a long 24 years, having been diagnosed at birth with no prior warning or knowledge that he could have this awful disease. But Tom didn’t lose his battle, no, Tom fought it in the way he knows best, he fought it on his terms and he passed on his terms, you won Tom not CF, you kicked it in the face and are truly an inspirational person, an example of not letting a condition define you.

There were many times Tom struggled both physically and mentally, we’d have late night text message exchanges and chats about how he was doing. There were hundreds of hospital visits, bedside chats, dreaming of all the things we wanted to do together.

It’s fair to say CF took it out of Tom, particularly in his latter years. He was due to receive a double lung and heart transplant back in 2021 which would have prolonged his life for much further, however his lungs became infected again and sadly this time it would become one too many infections resulting in his body no longer being fit enough to receive his transplant. From this moment on we knew as a family it would become a matter of how we can best lengthen his time with us and that he did for another 3 years.

I will always be in admiration of how Tom was able to push on and fight through, so if he’s able to do that I’m sure I can manage a marathon!

After all, if you never quit you never lose, and Tom certainly never quit!

Any donation no matter how big or small is appreciated! Even sharing this page and spreading awareness will massively help! It really does all help the CF trust to continue with further research in the hope of a cure and to support those living with CF and their family and friends.

April 26th 2026…..let’s go! #Tomsrun #cysticfibrosis #CFTrust #Londonmarathon