My Story

In April 2026, I’ll be lacing up my trainers and taking on the iconic London Marathon—a challenge of 26.2 miles that will push me to my limits both physically and mentally. But my motivation to cross that finish line goes far beyond personal achievement.

In 2024, I met Naomi through our local fitness class. As the group got to know each other, she began opening up about her daughter, Lottie—and what she shared has stayed with me ever since. The group held a charity fundraiser which I was unable to take part in, so I decided to take on this challenge as part of our fundraising. 

Lottie is just four and a half years old and lives with an ultra-rare genetic condition—a de novo pathogenic MORC2 gene variant. Only about 20 people in the world are known to carry this specific mutation, and of those, just two—including Lottie—also suffer from seizures.

She had her first seizure before her first birthday, and was diagnosed at age two. Since then, epilepsy has become a part of her everyday life. She’s supported by a whole team of specialists—from neurologists and geneticists to speech therapists and epilepsy nurses—and also has an EHCP in place to support her at school.

Despite the daily challenges, Lottie is full of spirit, determination, and resilience. Everyone who knows her speaks with such pride and admiration. She continues to amaze professionals and family alike with her strength and progress.

After hearing about Lottie’s journey, I knew I wanted to make a difference. That’s why I’m running to raise funds for Epilepsy Action—a charity that provides vital support, education, and advocacy for people living with epilepsy. They help families like Lottie’s get the understanding, resources, and hope they so urgently need.

By donating, you’re not just supporting my marathon effort—you’re helping to improve lives, spread awareness, and bring hope to thousands of people affected by epilepsy. Every pound truly makes a difference.