My Story

PANS PANDAS UK is a charity that was established by a dedicated group of parents with children that are affected by these conditions who were determined to make a difference to how these conditions are understood by both the general public and the medical profession. 

I came across the conditions during my constituency work when I was contacted by a family who were struggling to support their daughter and navigating health and education challenges. I became a member of the All Party Parliamentary Group for PANS PANDAs and led a debate in Parliament. Following the General Election in 2024 I secured a meeting for the charity with the relevant health minister. 

Support for PANS PANDAS remains very patchy with families often dependent on having a supportive GP who is willing to consider the conditions as the cause of the very distressing symptoms that include OCD, tics, restrictive eating behaviours, anxiety and enuresis. The money raised from my maraton efforts will be used to support further research. 

I've never run a marathon before, so this is big undertaking for me. Any donation you can make will be very much appreciated - thank you!